I didn't write for a while because a had/have full hands with  trying to stay  on top of things. I'm completely without energy and its probably because my blood cell are very low. I'm not sure about that because they don't test my blood very often.

At the moment I'm too weak to even get up and stand for a minute. I'm completely tired and hopefully they'll fix me up after the weekend

I can't wait for tomorrow to get myself sorted because at the moment I have enough of everything. That is all for today.

Cheers till later,

Rob 

So I wen to the lymphoma clinic to show all my stocking and bicycle shorts that I have and to tell them how it all works. I think I'm getting on the top of my swelling problem. At least in one area and for the time being. I got few more things to try but otherwise I will not got to the clinic anymore unless there are some bad changes. Yesterday I started taking some new pill that my doc prescribed, one of the pills, for treatment of my bad tongue, is I thing a strong antibiotic that you take once a day with or after food. I think I took it couple of hours after and I had such a stomach problem whole afternoon and night and to be honest its still not sorted. I hope that if I take it with food it will be ok. I'm not even 100% sure if the reason was the pill. I'm not looking forward if I'll have similar problems. Anyway, enough bitching for today.

The weather is crap again and I'm miserable. As always when It's cloudy and rainy I need my oxygen mask on 24/7. It dries my month and makes sleeping even more difficult.

I can't believe how much influence the weather has on my body. When its nice and sunny I'm feeling 100% better then when it's rainy and cloudy. 

The doc explained to me why the breathing is easier in good weather. It has something to do with the fact that good weather = high atmospheric pressure = more oxygen in the air. That explains why I can't breath when the weather is rubbish. 

And its not just breathing because if I don't get proper sleep I feel weak and miserable and everything is bothering me. Everything is more sore as well.

My mouth is all funny at the moment too. It feels like when I was on chemo. I don;t know if its because of the pills I'm taking or something else. My tongue is raw and its painful to chew hard food, even things like bread. Apparently its called "Beef Tongue" and they prescribed some pills for me that should help it. So more pills into my ever increasing arsenal and I'll see if it works.

My visit with the lymphoma specialists wasn't too productive. They prescribed by some stuff to wear to le swelling. I'm still waiting for cycling shorts that I had to buy so I haven't tried the whole thing yet. But I know that wearing the bits on its own is very uncomfortable and all of them together will be horrible. I don't thing I'll be able to wear it 24/7.

The stockings, if I wear the at night give me horrible crumps in my foot and the only way to get rid of the crump is to take the stocking off. So if I go to bed with the stocking I wake up in the middle of night because of the crump, try to massage it for half an hour, then I give up and take the stocking off and in two minutes I get massage the crump away.

On Thursday I'm going back to see the with all the gear and check if its the right size and of course complain about how uncomfortable it is. I thing I rather be swollen then then wrapped up in stockings and suspenders etc.

Otherwise the is nothing new, I can't sleep well at night because I'm waking up all the time for some reason and then I'm very tired during the day. The weather is crap so I'm using oxygen quite a lot. I can't go to horizontal position and not have oxygen.  It makes my mouth very dry and that's one of the reasons why I'm waking up all the time.

Anyway, more of the same basically.

Till later,

Rob 

My swelling is bit more under control now that I take small dose of the diaretics but more often. The only thing that is still swollen is my little (or rather large at the moment) friend. Tomorrow I'm finally going to see the lymphoma specialist in the hospice so I'll see what they'll come up with.

Otherwise things are ok except for the fact that I can't sleep, I keep waking up and generally just don't enjoy night. I can get rest and even fall asleep durind the day but for long enough to catch up all the lost time.

Now when the weather is crap and the air is very heavy I have the oxygen on my non stop. As soon as the sky clears up I can take it off and breath fine. Just shows how much influence the weather has. When I wake into a dull horrible morning I'm tired and miserable whole day.

I received my TAXI CARD now but don't know if I ever use it because I'm not too keen to go anywhere. Maybe we'll go to a restaurant for Lenkas birthday which is end of this week. I just don't think I'll comfortable outside of my zone. And its will be probably a waste of money as well since I don't eat a lot. I can't even drink, how much fun will that be

Anyway, enough for today. Till next time.